kmcclarnon Posted March 3, 2008 Share Posted March 3, 2008 (edited) Hi, i know i only just recently got back into the Jaguar scene. Unfortunately my little cousin has been diagnosed with Hunter's Syndrome, a rare genetic disorder affecting some sort of enzyme storage/production. It is usually fatal by the age of 12-15. It has only affected somewhere near 50 children in the United States. The treatment is barely past experimentation and costs a fucking ridiculous $300,000 a year. Medicaid let them know this past week that they won't be covering it. Our only hope is that Riley Hospital might foot some of the bill and use him for some research. Being 19, I want to help them out and in this case it means parting with something dear. For Auction, Gorf Special Release #20 http://cgi.ebay.com/Atari-Jaguar-Gorf-Spec...1QQcmdZViewItem EDIT: sorry link fixed, thanks shawnsr Edited March 4, 2008 by kmcclarnon Quote Link to comment Share on other sites More sharing options...
[d2f]Iggy*SJB Posted March 4, 2008 Share Posted March 4, 2008 Hi, i know i only just recently got back into the Jaguar scene. Unfortunately my little cousin has been diagnosed with Hunter's Syndrome, a rare genetic disorder affecting some sort of enzyme storage/production. It is usually fatal by the age of 12-15. It has only affected somewhere near 50 children in the United States. The treatment is barely past experimentation and costs a fucking ridiculous $300,000 a year. Medicaid let them know this past week that they won't be covering it. Our only hope is that Riley Hospital might foot some of the bill and use him for some research. Being 19, I want to help them out and in this case it means parting with something dear. For Auction, Gorf Special Release #20 http://cgi.ebay.com/ws/eBayISAPI.dll?ViewI...em=200204965353 Die Seite kann nicht aufgerufen werden Quote Link to comment Share on other sites More sharing options...
Shawn Posted March 4, 2008 Share Posted March 4, 2008 (edited) Hi, i know i only just recently got back into the Jaguar scene. Unfortunately my little cousin has been diagnosed with Hunter's Syndrome, a rare genetic disorder affecting some sort of enzyme storage/production. It is usually fatal by the age of 12-15. It has only affected somewhere near 50 children in the United States. The treatment is barely past experimentation and costs a fucking ridiculous $300,000 a year. Medicaid let them know this past week that they won't be covering it. Our only hope is that Riley Hospital might foot some of the bill and use him for some research. Being 19, I want to help them out and in this case it means parting with something dear. For Auction, Gorf Special Release #20 http://cgi.ebay.com/ws/eBayISAPI.dll?ViewI...em=200204965353 Die Seite kann nicht aufgerufen werden Give the guy a f-n' break his family memeber is dying. Here is the link: http://cgi.ebay.com/Atari-Jaguar-Gorf-Spec...1QQcmdZViewItem Edited March 4, 2008 by Shawn Sr. Quote Link to comment Share on other sites More sharing options...
Crazy Climber Posted March 4, 2008 Share Posted March 4, 2008 This is a pretty rare game IIRC Quote Link to comment Share on other sites More sharing options...
+cvga Posted March 4, 2008 Share Posted March 4, 2008 Good luck with your auction. You sound like a great cousin. I'm sure you're already helping them out more than you realize. Quote Link to comment Share on other sites More sharing options...
[d2f]Iggy*SJB Posted March 4, 2008 Share Posted March 4, 2008 Hi, i know i only just recently got back into the Jaguar scene. Unfortunately my little cousin has been diagnosed with Hunter's Syndrome, a rare genetic disorder affecting some sort of enzyme storage/production. It is usually fatal by the age of 12-15. It has only affected somewhere near 50 children in the United States. The treatment is barely past experimentation and costs a fucking ridiculous $300,000 a year. Medicaid let them know this past week that they won't be covering it. Our only hope is that Riley Hospital might foot some of the bill and use him for some research. Being 19, I want to help them out and in this case it means parting with something dear. For Auction, Gorf Special Release #20 http://cgi.ebay.com/ws/eBayISAPI.dll?ViewI...em=200204965353 Die Seite kann nicht aufgerufen werden Give the guy a f-n' break his nephew is dying. Here is the link: http://cgi.ebay.com/Atari-Jaguar-Gorf-Spec...1QQcmdZViewItem Chill out, dude....I mearly quoted what his link lead me to. Quote Link to comment Share on other sites More sharing options...
Shawn Posted March 4, 2008 Share Posted March 4, 2008 Hi, i know i only just recently got back into the Jaguar scene. Unfortunately my little cousin has been diagnosed with Hunter's Syndrome, a rare genetic disorder affecting some sort of enzyme storage/production. It is usually fatal by the age of 12-15. It has only affected somewhere near 50 children in the United States. The treatment is barely past experimentation and costs a fucking ridiculous $300,000 a year. Medicaid let them know this past week that they won't be covering it. Our only hope is that Riley Hospital might foot some of the bill and use him for some research. Being 19, I want to help them out and in this case it means parting with something dear. For Auction, Gorf Special Release #20 http://cgi.ebay.com/ws/eBayISAPI.dll?ViewI...em=200204965353 Die Seite kann nicht aufgerufen werden Give the guy a f-n' break his nephew is dying. Here is the link: http://cgi.ebay.com/Atari-Jaguar-Gorf-Spec...1QQcmdZViewItem Chill out, dude....I mearly quoted what his link lead me to. It's all good in the hood Quote Link to comment Share on other sites More sharing options...
kmcclarnon Posted March 10, 2008 Author Share Posted March 10, 2008 bump 40 minutes left Quote Link to comment Share on other sites More sharing options...
holygrailvideogames.com Posted March 10, 2008 Share Posted March 10, 2008 (edited) I am sorry to hear about your cousin. Your cousin's parents might want to try other hospital's across the country if Riley hospital is not able to help. You might want to consider referring them to St. Jude (link below) or Children's Hospital (link below) in St. Louis. One of these hospital's might be able to help. http://www.stjude.org/stjude/v/index.jsp?v...0000e2015acRCRD http://www.slch.org/ Edited March 10, 2008 by holygrailvideogames.com Quote Link to comment Share on other sites More sharing options...
Crazy Climber Posted March 11, 2008 Share Posted March 11, 2008 Final Price $153.51 for any future AA readers that are curious Quote Link to comment Share on other sites More sharing options...
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